{"id":361,"date":"2025-10-10T10:15:55","date_gmt":"2025-10-10T08:15:55","guid":{"rendered":"https:\/\/aflip.org\/?p=361"},"modified":"2025-10-10T10:17:20","modified_gmt":"2025-10-10T08:17:20","slug":"forum-des-leaders-de-la-lipodystrophie-a-dublin-une-experience-humaine-et-collaborative-au-service-des-patients","status":"publish","type":"post","link":"https:\/\/aflip.org\/index.php\/2025\/10\/10\/forum-des-leaders-de-la-lipodystrophie-a-dublin-une-experience-humaine-et-collaborative-au-service-des-patients\/","title":{"rendered":"Forum des Leaders de la Lipodystrophie \u00e0 Dublin : une exp\u00e9rience humaine et collaborative au service des patients"},"content":{"rendered":"<p data-start=\"301\" data-end=\"714\">Cette ann\u00e9e, <strong data-start=\"314\" data-end=\"369\">l\u2019Association Fran\u00e7aise des Lipodystrophies (AFLIP)<\/strong> a eu la chance de participer au <strong data-start=\"402\" data-end=\"444\">Forum des Leaders de la Lipodystrophie<\/strong>, organis\u00e9 \u00e0 Dublin.<br data-start=\"464\" data-end=\"467\" \/>Cet \u00e9v\u00e9nement international a r\u00e9uni des associations de patients, des experts m\u00e9dicaux, des chercheurs et des partenaires de sant\u00e9, tous engag\u00e9s pour faire progresser la connaissance et la prise en charge de la lipodystrophie \u00e0 travers le monde.<\/p>\n<h3 data-start=\"716\" data-end=\"780\">Un engagement collectif pour une meilleure prise en charge<\/h3>\n<p data-start=\"782\" data-end=\"878\">La participation d\u2019AFLIP \u00e0 ce forum s\u2019inscrit dans la continuit\u00e9 de son engagement en faveur :<\/p>\n<ul data-start=\"879\" data-end=\"1050\">\n<li data-start=\"879\" data-end=\"931\">\n<p data-start=\"881\" data-end=\"931\">d\u2019un <strong data-start=\"886\" data-end=\"928\">diagnostic plus pr\u00e9coce et plus pr\u00e9cis<\/strong>,<\/p>\n<\/li>\n<li data-start=\"932\" data-end=\"980\">\n<p data-start=\"934\" data-end=\"980\">d\u2019une <strong data-start=\"940\" data-end=\"977\">meilleure accessibilit\u00e9 aux soins<\/strong>,<\/p>\n<\/li>\n<li data-start=\"981\" data-end=\"1050\">\n<p data-start=\"983\" data-end=\"1050\">et du d\u00e9veloppement d\u2019une <strong data-start=\"1009\" data-end=\"1047\">coop\u00e9ration internationale durable<\/strong>.<\/p>\n<\/li>\n<\/ul>\n<p data-start=\"1052\" data-end=\"1412\">Ces \u00e9changes ont permis de partager les exp\u00e9riences et les initiatives men\u00e9es dans diff\u00e9rents pays, tout en identifiant les d\u00e9fis communs auxquels les patients atteints de lipodystrophie sont confront\u00e9s.<br data-start=\"1255\" data-end=\"1258\" \/>Le forum a ainsi renforc\u00e9 la conviction qu\u2019une <strong data-start=\"1305\" data-end=\"1345\">collaboration internationale \u00e9troite<\/strong> est indispensable pour am\u00e9liorer la qualit\u00e9 de vie des patients.<\/p>\n<h3 data-start=\"1414\" data-end=\"1466\">Des \u00e9changes constructifs et porteurs d\u2019avenir<\/h3>\n<p data-start=\"1468\" data-end=\"1728\">Ce rassemblement a \u00e9t\u00e9 un moment fort de dialogue, de partage d\u2019expertise et d\u2019\u00e9motions.<br data-start=\"1556\" data-end=\"1559\" \/>Les discussions ont mis en lumi\u00e8re la diversit\u00e9 des approches m\u00e9dicales et sociales, mais \u00e9galement la volont\u00e9 commune d\u2019avancer ensemble vers des solutions concr\u00e8tes.<\/p>\n<p data-start=\"1730\" data-end=\"1986\">La lipodystrophie, en tant que maladie rare, n\u00e9cessite une coordination entre les acteurs de diff\u00e9rents pays afin de <strong data-start=\"1847\" data-end=\"1873\">favoriser la recherche<\/strong>, <strong data-start=\"1875\" data-end=\"1903\">harmoniser les pratiques<\/strong> et <strong data-start=\"1907\" data-end=\"1947\">renforcer la visibilit\u00e9 des patients<\/strong> au niveau europ\u00e9en et international.<\/p>\n<h3 data-start=\"1988\" data-end=\"2017\">Un grand merci \u00e0 Chiesi<\/h3>\n<p data-start=\"2019\" data-end=\"2372\">AFLIP tient \u00e0 remercier chaleureusement <strong data-start=\"2059\" data-end=\"2069\">Chiesi<\/strong> pour l\u2019organisation de ce forum et pour leur engagement constant aux c\u00f4t\u00e9s des associations de patients.<br data-start=\"2174\" data-end=\"2177\" \/>Leur soutien permet de cr\u00e9er un espace d\u2019\u00e9changes constructifs, o\u00f9 chaque acteur peut contribuer \u00e0 la construction d\u2019un avenir plus inclusif pour les personnes concern\u00e9es par la lipodystrophie.<\/p>\n<h3 data-start=\"2374\" data-end=\"2403\">Poursuivre la dynamique<\/h3>\n<p data-start=\"2405\" data-end=\"2548\">La participation d\u2019AFLIP \u00e0 ce forum marque une \u00e9tape importante dans son action internationale.<br data-start=\"2500\" data-end=\"2503\" \/>L\u2019association poursuivra son travail pour :<\/p>\n<ul data-start=\"2549\" data-end=\"2737\">\n<li data-start=\"2549\" data-end=\"2598\">\n<p data-start=\"2551\" data-end=\"2598\">encourager la <strong data-start=\"2565\" data-end=\"2595\">coop\u00e9ration entre les pays<\/strong>,<\/p>\n<\/li>\n<li data-start=\"2599\" data-end=\"2663\">\n<p data-start=\"2601\" data-end=\"2663\">renforcer les <strong data-start=\"2615\" data-end=\"2660\">partenariats scientifiques et associatifs<\/strong>,<\/p>\n<\/li>\n<li data-start=\"2664\" data-end=\"2737\">\n<p data-start=\"2666\" data-end=\"2737\">et promouvoir <strong data-start=\"2680\" data-end=\"2711\">l\u2019acc\u00e8s \u00e9quitable aux soins<\/strong> pour tous les patients.<\/p>\n<\/li>\n<\/ul>\n<p data-start=\"2739\" data-end=\"2954\">Ce forum restera un moment marquant, symbole d\u2019un engagement collectif et d\u2019une volont\u00e9 commune : <strong data-start=\"2837\" data-end=\"2948\">faire avancer la connaissance, le diagnostic et la qualit\u00e9 de vie des personnes atteintes de lipodystrophie<\/strong>. \ud83d\udc99<\/p>\n<p data-start=\"2739\" data-end=\"2954\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-368 aligncenter\" src=\"http:\/\/aflip.org\/wp-content\/uploads\/2025\/10\/IMG-20251003-WA0011-300x225.jpg\" alt=\"\" width=\"300\" height=\"225\" srcset=\"https:\/\/aflip.org\/wp-content\/uploads\/2025\/10\/IMG-20251003-WA0011-300x225.jpg 300w, https:\/\/aflip.org\/wp-content\/uploads\/2025\/10\/IMG-20251003-WA0011-1024x768.jpg 1024w, https:\/\/aflip.org\/wp-content\/uploads\/2025\/10\/IMG-20251003-WA0011-768x576.jpg 768w, https:\/\/aflip.org\/wp-content\/uploads\/2025\/10\/IMG-20251003-WA0011-1536x1152.jpg 1536w, https:\/\/aflip.org\/wp-content\/uploads\/2025\/10\/IMG-20251003-WA0011-80x60.jpg 80w, https:\/\/aflip.org\/wp-content\/uploads\/2025\/10\/IMG-20251003-WA0011.jpg 2048w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Cette ann\u00e9e, l\u2019Association Fran\u00e7aise des Lipodystrophies (AFLIP) a eu la chance de participer au Forum des Leaders de la Lipodystrophie, organis\u00e9 \u00e0 Dublin.Cet \u00e9v\u00e9nement international a r\u00e9uni des associations de patients, des experts m\u00e9dicaux, des chercheurs et des partenaires de sant\u00e9, tous engag\u00e9s pour faire progresser la connaissance et la prise en charge de la &hellip; <\/p>\n","protected":false},"author":2,"featured_media":371,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4],"tags":[],"class_list":["post-361","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualites"],"_links":{"self":[{"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/posts\/361","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/comments?post=361"}],"version-history":[{"count":1,"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/posts\/361\/revisions"}],"predecessor-version":[{"id":370,"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/posts\/361\/revisions\/370"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/media\/371"}],"wp:attachment":[{"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/media?parent=361"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/categories?post=361"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/tags?post=361"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}