{"id":33,"date":"2024-04-19T18:18:32","date_gmt":"2024-04-19T16:18:32","guid":{"rendered":"http:\/\/192.168.1.151\/?page_id=33"},"modified":"2024-11-15T18:27:09","modified_gmt":"2024-11-15T17:27:09","slug":"les-sites-de-references-prisis","status":"publish","type":"page","link":"https:\/\/aflip.org\/index.php\/les-sites-de-references-prisis\/","title":{"rendered":"Les sites de r\u00e9f\u00e9rences"},"content":{"rendered":"\r\n<h2 class=\"wp-block-heading has-medium-font-size\"><span style=\"color: #000000;\">PRISIS<\/span><\/h2>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<p class=\"wp-block-paragraph\"><span style=\"color: #000000;\">Centre de r\u00e9f\u00e9rence coordonnateur des pathologies rares de l\u2019insulino-s\u00e9cr\u00e9tion et de l\u2019insulino-sensibilit\u00e9 (PRISIS) :<\/span><\/p>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<ul class=\"wp-block-list\">\r\n<li><span style=\"color: #000000;\"><a style=\"color: #000000;\" href=\"https:\/\/saintantoine.aphp.fr\/centre-de-reference-coordonnateur-des-pathologies-rares-de-linsulino-secretion-et-de-linsulino-sensibilite-prisis\/\">https:\/\/saintantoine.aphp.fr\/centre-de-reference-coordonnateur-des-pathologies-rares-de-linsulino-secretion-et-de-linsulino-sensibilite-prisis\/<\/a><\/span><\/li>\r\n<\/ul>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<ul class=\"wp-block-list\">\r\n<li><span style=\"color: #000000;\"><a style=\"color: #000000;\" href=\"https:\/\/endocrino-sat.aphp.fr\/prisis\/les-lipodystrophies\/\">https:\/\/endocrino-sat.aphp.fr\/prisis\/les-lipodystrophies\/<\/a><\/span><\/li>\r\n<\/ul>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<h2 class=\"wp-block-heading has-medium-font-size\"><span style=\"color: #000000;\">FIRENDO<\/span><\/h2>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<p class=\"wp-block-paragraph\"><span style=\"color: #000000;\">La \ufb01li\u00e8re maladies rares FIRENDO a pour vocation nationale de r\u00e9unir les centres cliniques experts en maladies rares endocriniennes et de permettre des \u00e9changes avec les acteurs du secteur du diagnostic, de la recherche, de l&rsquo;enseignement et du monde associatif au sein d&rsquo;une r\u00e9\ufb02exion collaborative.<\/span><\/p>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<ul class=\"wp-block-list\">\r\n<li><span style=\"color: #000000;\"><a style=\"color: #000000;\" href=\"https:\/\/www.firendo.fr\/actualites\/actualites\/article\/les-lipodystrophies-sont-sur-youtube-videos-courtes-sur-les-maladies-rares-endocriniennes\">https:\/\/www.firendo.fr\/actualites\/actualites\/article\/les-lipodystrophies-sont-sur-youtube-videos-courtes-sur-les-maladies-rares-endocriniennes<\/a><\/span><\/li>\r\n<\/ul>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<h2 class=\"wp-block-heading has-medium-font-size\"><span style=\"color: #000000;\">Haute Autorit\u00e9 de Sant\u00e9<\/span><\/h2>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<ul class=\"wp-block-list\">\r\n<li><span style=\"color: #000000;\"><a style=\"color: #000000;\" href=\"https:\/\/www.has-sante.fr\/upload\/docs\/application\/pdf\/2021-02\/syndrome_lipodystrophique_de_dunnigan_-_pnds.pdf\">https:\/\/www.has-sante.fr\/upload\/docs\/application\/pdf\/2021-02\/syndrome_lipodystrophique_de_dunnigan_-_pnds.pdf<\/a><\/span><\/li>\r\n<\/ul>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<h2 class=\"wp-block-heading has-medium-font-size\"><span style=\"color: #000000;\">Les centres de prises en charges en Europe :<\/span><\/h2>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<ul class=\"wp-block-list\">\r\n<li><span style=\"color: #000000;\"><a style=\"color: #000000;\" href=\"https:\/\/fr.lipodystrophy.eu\/fr\/professionnels-de-sante\/service\/centres-de-prise-en-charge\">https:\/\/fr.lipodystrophy.eu\/fr\/professionnels-de-sante\/service\/centres-de-prise-en-charge<\/a><\/span><\/li>\r\n<\/ul>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<h2 class=\"wp-block-heading has-medium-font-size\"><span style=\"color: #000000;\">Alliance Maladies Rares<\/span><\/h2>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<ul class=\"wp-block-list\">\r\n<li><span style=\"color: #000000;\"><a style=\"color: #000000;\" href=\"https:\/\/alliance-maladies-rares.org\/\">https:\/\/alliance-maladies-rares.org\/<\/a><\/span><\/li>\r\n<\/ul>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<h2 class=\"wp-block-heading\"><span style=\"color: #000000;\">Quelques associations :<\/span><\/h2>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<p class=\"wp-block-paragraph\"><span style=\"color: #000000;\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/lh7-us.googleusercontent.com\/docsz\/AD_4nXdxzt1nBCHFTt6TW3lt_yHKSIVqGRuiO0R9JAJw381C0_y3U_M09fDdhTnzz4vu7C0-8w8RFQHz7_VU3ZHYDxB7MPqnguhvDIHVXkzwzCfr7TmBOjX20r3eKJNLcaNe8f4rIy9p9HLlvrOfvdX1UwRavZzl?key=D9qmKVJ8G8t5mrsHMT6cCQ\" width=\"78\" height=\"78\" \/> <a style=\"color: #000000;\" href=\"https:\/\/www.vaincre-dunnigan.org\/\">https:\/\/www.vaincre-dunnigan.org\/<\/a><\/span><\/p>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<p class=\"wp-block-paragraph\"><span style=\"color: #000000;\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/lh7-us.googleusercontent.com\/docsz\/AD_4nXd3bq5gWXZUNDFkkK8DIGG9ST55nK8j09HwCv-v09i-hXtJ86HaxM1zxqIE-irYkcteyVNBk0gABFPqi5fnGvNV-4KdIsSxcaFai7HKw9RBrJMPZwfhP2RzFfxwuCfQ4KqYxR-Q4HkHhMlx4T7ll8Dbu-iN?key=D9qmKVJ8G8t5mrsHMT6cCQ\" width=\"135\" height=\"42\" \/> <a style=\"color: #000000;\" href=\"https:\/\/lipodystrophyuk.org\/videos\/living-with-lipodystrophy\/\">https:\/\/lipodystrophyuk.org\/videos\/living-with-lipodystrophy\/<\/a><\/span><\/p>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<p class=\"wp-block-paragraph\"><span style=\"color: #000000;\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/lh7-us.googleusercontent.com\/docsz\/AD_4nXcWhddUe0PvQE3CifwN2t-rzfyl2MuJFyxOr-f-qBDbFBgMuj2ROQ5JI1tV3AG8OelHZjX0xpX6ggXLOiogAFnScijAmpA8M6A4rrJJV7jb9iYMg6NPcCzHVDuhyLAAzJ-_l3xe-NNgIp2GZQ34hZ89-Wqi?key=D9qmKVJ8G8t5mrsHMT6cCQ\" width=\"100\" height=\"73\" \/> <a style=\"color: #000000;\" href=\"https:\/\/lipodystrophy-canada-foundation.wiredwebsites.org\/\">https:\/\/lipodystrophy-canada-foundation.wiredwebsites.org\/<\/a><\/span><\/p>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<p class=\"wp-block-paragraph\"><span style=\"color: #000000;\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/lh7-us.googleusercontent.com\/docsz\/AD_4nXe6-5AE_kF1FhlVx1lY3CAajFAm2O4dLG9TwbSKUZy4ccv1-8lVsjx7nIrGUqIdVwcfEu-m70tox8fJl0bzQ-E0B396_vRXPsRDW033bsXhX8QpHeflIbZbWnR9jAbmpMFrHzTPvwSgfMvPI7F1UYCUgyk?key=D9qmKVJ8G8t5mrsHMT6cCQ\" width=\"166\" height=\"37\" \/> <a style=\"color: #000000;\" href=\"https:\/\/lipodystrophyunited.org\/other-resources\">https:\/\/lipodystrophyunited.org\/other-resources<\/a><\/span><\/p>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<p class=\"wp-block-paragraph\"><span style=\"color: #000000;\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/lh7-us.googleusercontent.com\/docsz\/AD_4nXex2GmU7FXGiBQdPuCELL3NXaJ9ivuqiS1D6IC4VnCv9_CSi1f0qzMKCrlLGLnQOm_7w8BPwQSryDPdtoytyTuHA5fqfK5B7rA58CDFp8AYttSwfEzyCgWB6hv3nSbBbxi_MUPT3qhmIFPgYjgrfVhZQfAT?key=D9qmKVJ8G8t5mrsHMT6cCQ\" width=\"165\" height=\"66\" \/> <a style=\"color: #000000;\" href=\"https:\/\/aelip.es\/\">https:\/\/aelip.es\/<\/a><\/span><\/p>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<p class=\"wp-block-paragraph\"><span style=\"color: #000000;\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/lh7-us.googleusercontent.com\/docsz\/AD_4nXedlp-lk3eSfGduENPvP5K3aQo_eKbg-Vwmod7WW6e9u1EuweqaUC7EpEEROLDuxjs9emhokJIGVoZY4J1GfdB4vdzUhUAFNyUNSGB3vUXYoWL76DBZ5MOFWfSqZIIKkml5XCLV6gDSJtL3PV7EqARF_Zo4?key=D9qmKVJ8G8t5mrsHMT6cCQ\" width=\"185\" height=\"50\" \/> <a style=\"color: #000000;\" href=\"https:\/\/asposbern.com.br\/\">https:\/\/asposbern.com.br\/<\/a><\/span><\/p>\r\n<p><span style=\"color: #000000;\">\r\n\r\n<\/span><\/p>\r\n<p class=\"wp-block-paragraph\"><span style=\"color: #000000;\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/lh7-us.googleusercontent.com\/docsz\/AD_4nXdJO0gqnXDXIpoV-yT2av2oC32LumhkYKkZDSzNsQ_ame0uU7uu_BRJ5BY4ESuDHk1fQcnVZuEn3Nug2_d8v7LgAp1DunePYB5XT-uJg8KCeheusFidLMd1gaVuCUS7DOmjidMcN_Jc6sgBK0xUp_8M20Fg?key=D9qmKVJ8G8t5mrsHMT6cCQ\" width=\"75\" height=\"69\" \/> <a style=\"color: #000000;\" href=\"https:\/\/www.eclip-web.org\/\">https:\/\/www.eclip-web.org\/<\/a><\/span><\/p>\r\n\r\n\r\n\r\n<p class=\"wp-block-paragraph\">&nbsp;<\/p>\r\n","protected":false},"excerpt":{"rendered":"<p>PRISIS Centre de r\u00e9f\u00e9rence coordonnateur des pathologies rares de l\u2019insulino-s\u00e9cr\u00e9tion et de l\u2019insulino-sensibilit\u00e9 (PRISIS) : FIRENDO La \ufb01li\u00e8re maladies rares FIRENDO a pour vocation nationale de r\u00e9unir les centres cliniques experts en maladies rares endocriniennes et de permettre des \u00e9changes avec les acteurs du secteur du diagnostic, de la recherche, de l&rsquo;enseignement et du monde &hellip; <\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-33","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/pages\/33","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/comments?post=33"}],"version-history":[{"count":9,"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/pages\/33\/revisions"}],"predecessor-version":[{"id":319,"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/pages\/33\/revisions\/319"}],"wp:attachment":[{"href":"https:\/\/aflip.org\/index.php\/wp-json\/wp\/v2\/media?parent=33"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}